Rare Disease tea party, 10 July 2019, London, UK.
The British Paediatric Surveillance Unit annual event to enjoy afternoon tea and cakes. Hear young people speak about their experience of living with rare disease and visit informational stands.
Key note speeches will be delivered by Baroness Blackwood, Parliamentary Under Secretary for Public Health and Innovation, and by deputy Chief Medical Officer for England, Prof Jenny Harries.
The BPSU rare disease tea party will bring together stakeholders from across the rare disease community to hear young people and patient advocates speak about their experience of living with rare disease and working in the rare disease field.
This event is intended to be an informal networking opportunity with children and young people and carers, healthcare professionals, researchers and policy makers.
Attending on behalf of aPODD is trustee Evie Mengou and if you would like to find our more about the work of aPODD you can meet and chat with Evie whilst enjoying tea and cake!